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The meeting of the Youth Panel of young people with diabetes in Rome

Published

March 9, 2009

in the Youth Panel , diabetes , events and news

The Italian Youth Panel (a group of young men determined to build a better future for diabetes) was found in Rome, 5 to 7 March 2009. Thursday 5 attended the diabetes with politicians in the Senate Health Commission, as I had already spoken in another article . The next two days the group of young people with diabetes participated in a course of investigating various issues of diabetes, also planning its future activities.

Lo Youth Panel ricevuto in Commissione Igiene e Sanità del Senato

The Panel received Youth Commission of the Senate Health and Hygiene

Unfortunately the board of the youth panel lacked for work Marco Peruffo, while among the boys there was Cecilia Hunters, which for the first time she lived with an educational experience like this.

Friday, March 6 The morning began with the introduction of the Youth Panel being held by Aurora Ketmaier, president of JDRF Italy, which also presented the program together with Cesare Muratore and Guido Seu.

Il board dello Youth Panel illustra il progetto del corso a Roma

The board of the Youth Panel illustrates the course design in Rome

Soon after Dr. Federico Serra, public affairs manager at Novo Nordisk Youth Panel spoke del'Italian in general, tracing the history of the project since its inception in 2007 when a group of young people has been proposed to represent the diabetes in young people since then have followed numerous meetings with participation in various important events. Some were overcome difficult times together, reaching today a stable, established and mature, ready to face the great challenges of diabetes in the future. It was a great moment of reflection, remembering that the Italian project of the Youth Panel was strongly right by Federico Serra, along with a good board of experts, and the support of JDRF and Novo Nordisk.

Subsequently Dr. Alfonso La Loggia has started the course itself, presenting the scenario on diabetes and the Italian legislative issues related to it: the law n. 115, 1987, disability, assistance, driver's license ... An Italian situation complex, which in some points of view contains innovative ideas and examples in the global scenario, but also has many flaws and shortcomings, especially as regards the failure of many of the practical application principles. Continue reading 'The meeting of the Youth Panel of young people with diabetes in Rome'

The person at the center of diabetes and chronic disease: TPE and DAWN in Budapest

Published

Simone

November 6, 2008

in the Youth Panel , diabetes , events and news

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In these days, from 5 to 8 November 2008, held in Budapest on TPE : Therapeutic Patient Education Congress in 2008, dedicated to self-management of patient and long-term strategies and no diabetes and chronic illness. This international event is a collaboration of JDRF, IDF, ISPAD and other organisms, calling together experts from around the world, doctors, specialists, scientists, researchers.

The TPE is proposed a new approach to the disease, putting the individual at the heart of the matter. It emphasizes the need to improve the quality of life, and give a more human medicine. The conference was inaugurated by a poignant and moving theater group The Griot , an association of support for cancer patients, whose autobiography as actresses tell their dramatic story, conveying a great zest for life despite his condition. Thanks so much for what we teach.

In conjunction of the TPE is also held an international meeting of the DAWN study, supported by Novo Nordisk: Fourth International DAWN Submit, on a project that aims to cure diabetes and to give importance to human and psychosocial aspects of diabetes, going beyond the question clinic.

Like last year in Berlin, this year I took part in the 4th and 5th November in the work of the DAWN Youth. I attended the discussion sessions as a Youth Ambassador and member of the Youth Panel, together with professional and lively Italian delegation of the board, bringing my point of view and my direct experience firsthand as a boy with diabetes. More information can be found on www.dawnyouth.com .

I think it's very important the value of positive testimony to others. To this I agreed to sustain even a video interview, highlighting my experience that nowadays you can have a normal life with diabetes: a disease rather than diabetes is a condition in which to live. With commitment and passion can achieve their dreams, beyond all limits.

Sessione di lavori del DAWN Youth a Budapest

Work session of the DAWN Youth in Budapest

Now missing a week at the World Diabetes Day on November 14, whose theme this year is dedicated to diabetes in children and adolescents. And in this context, the priorities for young people with diabetes highlighted by the DAWN Youth are mainly: assistance in the school, which plays a key role, the ability to highlight and resolve the difficulties these children regarding the emotional ; the prevention of type 2 diabetes, also through physical activity, the study of discomfort caused by social and cultural context in children with diabetes.

The analysis of the results of studies done in recent months shows that, the cooperation between local and national institutions, health organizations, medical and nursing staff, scientific societies, patient organizations and companies. All together we can improve the perception of well-being and quality of life in youth with diabetes, from a human point of view, not to mention new therapies in the hope that scientific research will certainly provide us in the future.

Simone

Much of the Fundacion para la Diabetes Symposium

Published

Simone

November 1, 2008

in the Youth Panel , Diabetes and events

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Saturday, October 25 in Madrid last year I took part in the Great Symposium held to mark the tenth anniversary of the Fundacion para la Diabetes, a major Spanish body in the field of diabetes: I had anticipated in a previous article .

Un relatore al Gran Simposio sul diabete di Madrid

A speaker at the Symposium on Diabetes Gran Madrid

In the morning he spoke mainly about the support needed for young people with diabetes. This commitment must be at 360 degrees must understand the social life, friends, patients' associations, and everything that revolves around the daily life, with particular attention to the school. In this regard were also presented the results of the DAWN Youth. She was treated the possibility of improving the quality of life of people with diabetes through healthy lifestyles, proper nutrition, education widespread, but especially with regular physical activity and sport: there were several witnesses who spoke of this, among which one of the sport Diatlétic, very active in Spain in recent times.

The afternoon session dealt with matters of more technical and medical, with the presentation of the possible complications and their prevention, but also of modern therapies such as the insulin ("insulin de bomb" in Spanish ), And the latest discoveries in research.

I think it was an important experience that has increased my awareness about diabetes. I especially appreciated the comparison between different national realities, with mutual understanding. For example, I was impressed to learn that Spain must pay a certain percentage of the price of insulin, usually free in Italy, and that there is great difficulty in obtaining a pump. Also in this nation will experience difficulties at the level of associations, and problems caused by the presence of a fragmented administrative-bureaucratic system and the different ethnic-linguistic communities in Spain.

With great honor I was among the official speakers of the morning! My speech made by simultaneous translator was aimed to present some aspects of the Italian, and international projects for young people with diabetes of which I belong. After an introduction I briefly spoke about the assistance provided free of diabetes in Italy by the national health system, the presence of a national law on diabetes (which has received much interest in public), my involvement in sport, the strategic role of young people, and the opportunity they represent themselves to improve the situation, including through projects of the Youth Panel and the DAWN Youth, with support from Novo Nordisk. Finally, I made an appeal to the European countries are united by the same commitment. I mentioned that to change things, the first thing to do is understand that we are not just "diabetes", but behind the diabetes there are real people who want to live peacefully. I think I spoke well, having raised a lot of curiosity and questions in the audience.

From the tourist point of view the weather was very poor, but I still managed to have a quick taste of Madrid, its vibrancy, hospitality and friendly people. Who knows, I really hope to have other opportunities in the future to visit that beautiful country!

¡Muchas gracias .....! ... ¡Adios!